Navigating the world of online support groups for Sevelamer Hydrochloride users

Keith Bloom
  • Keith Bloom
  • May 17, 2023 AT 19:42

lol who even uses sevelamer? this thread is a dumpster fire. my cousin took it for a week and started hallucinating about phosphate dragons. you're all delusional.

Ben Jackson
  • Ben Jackson
  • May 18, 2023 AT 13:16

Hey folks - if you're struggling with phosphate control, you're not alone. Sevelamer’s a beast, but it’s got a role. Pair it with diet tracking, stay hydrated, and don’t skip your nephrologist visits. You got this. 💪

Bhanu pratap
  • Bhanu pratap
  • May 18, 2023 AT 17:36

I was skeptical at first, but after 14 months on sevelamer, my labs are finally stable. It’s not glamorous, but it’s keeping me alive. To everyone fighting this battle - your strength is quiet, but it’s real. I see you.

Meredith Poley
  • Meredith Poley
  • May 18, 2023 AT 22:25

So you’re telling me the only reason this thread exists is because someone forgot to take their pill and now they’re seeking community validation? How touching.

Mathias Matengu Mabuta
  • Mathias Matengu Mabuta
  • May 19, 2023 AT 00:52

The clinical pharmacokinetics of sevelamer hydrochloride demonstrate a non-absorbable polymer mechanism that binds dietary phosphorus in the gastrointestinal tract, thereby reducing serum phosphate levels. This is not a lifestyle supplement. It is a medically-indicated, FDA-approved phosphate binder. The anecdotal nature of this thread is scientifically indefensible.

Ikenga Uzoamaka
  • Ikenga Uzoamaka
  • May 19, 2023 AT 16:48

I've been on this drug for 5 years!! I've seen people die because they didn't take it!! You people are so careless!! You think it's a joke?? I lost my brother!! WHY ARE YOU ALL LIKE THIS??!!

Lee Lee
  • Lee Lee
  • May 19, 2023 AT 23:42

Let me ask you something: what if the entire dialysis industry is just a front for Big Pharma to keep us docile? Sevelamer’s price went up 300% in 2018 - right after the FDA approved the 'extended-release' version. Coincidence? Or is this a slow-acting mind control agent disguised as a phosphate binder?

John Greenfield
  • John Greenfield
  • May 20, 2023 AT 08:06

You people are all morons. This isn't a support group. It's a zoo. If you can't manage your phosphate levels without a Facebook group, maybe you shouldn't be on dialysis.

Dr. Alistair D.B. Cook
  • Dr. Alistair D.B. Cook
  • May 20, 2023 AT 21:45

I've tried everything - Renagel, Phoslo, even that weird chalky stuff they give you at the clinic - but sevelamer? It’s the only one that doesn’t make me feel like I swallowed a brick wrapped in regret. Also, it tastes like sadness and aluminum foil.

Ashley Tucker
  • Ashley Tucker
  • May 21, 2023 AT 01:46

America doesn't need this. We have real problems. Why are we wasting bandwidth on kidney meds? Go fix your car. Go vote. Stop posting about phosphate binders.

Allen Jones
  • Allen Jones
  • May 21, 2023 AT 14:22

I know they’re watching. The pills. The lab reports. The way the nurse smiles when she hands you the bottle. They’re tracking your phosphate levels to predict your emotional stability. I’ve seen the documents. They’re not just treating your kidneys - they’re conditioning you.

jackie cote
  • jackie cote
  • May 22, 2023 AT 00:36

Consistent dosing with meals is critical. Do not skip doses. Consult your renal dietitian. Maintain a food diary. Your outcomes improve with structure. This is not optional.

ANDREA SCIACCA
  • ANDREA SCIACCA
  • May 22, 2023 AT 06:01

I REMEMBER THE FIRST TIME I TOOK IT... I WAS IN A RAINY APARTMENT IN PHILADELPHIA... THE PILLS LOOKED LIKE WHITE GRAVEL... I CRIED... NOT BECAUSE IT HURT... BUT BECAUSE I REALIZED I WASN'T JUST A PERSON ANYMORE... I WAS A LAB RESULT... A NUMBER... A PHOSPHATE LEVEL... AND THEN I ATE A BANANA AND FELT LIKE A TRAITOR...

Camille Mavibas
  • Camille Mavibas
  • May 23, 2023 AT 03:35

sevelamer is a pain but it works 😔 i take it with my breakfast and i cry a little every time but i’m still here 🫂

Shubham Singh
  • Shubham Singh
  • May 23, 2023 AT 10:58

You think you suffer? I’ve been on dialysis for 12 years. I’ve watched my friends die. I’ve buried three of them. And now you’re here, crying about the taste of a pill? You have no idea what real pain is.

Hollis Hamon
  • Hollis Hamon
  • May 23, 2023 AT 21:19

If anyone needs help finding low-cost pharmacy programs or dietary resources for phosphate restriction, I’ve compiled a list of state-specific links and nonprofit contacts. No judgment. No drama. Just facts. DM me if you want it.

Ben Jackson
  • Ben Jackson
  • May 24, 2023 AT 12:57

Hollis, that list is gold. I’ve been sharing it with my clinic’s new patients. Also, the one about frozen veggie packs? Genius. I didn’t realize you could get low-phos broccoli in bulk.

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